Hope is a Journey….

As we surpass the 1 year mark for this ‘New System Introduction’ – I just want to RE SHARE this and keep it on the front burner. These changes are NOT acceptable for many in the disability community and many have chosen to go other places for their “Magical” vacations because of nightmare experiences with this ‘New System’ – Please share this post and help us be heard!

Show Your Hope!

Dear Disney,

I would like to take a moment and thank you for the joy you were able to give my children the last time we visited.

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I can’t begin to tell you how wonderful it was to see joy scribbled all over their faces….IMG_1079

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Last year, after a particularly tough time for all of us (medically speaking), my daughter had only one wish….to go to Disney and see the Villains during Halloween.  We scrimped, we saved, we planned – and our entire family went….it took a lot – but we made it happen for her.

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It was a magical time for all of us.

You see, vacations like these are truly gifts to us.  My family battles Mitochondrial Disease, Primary Immunodeficiency Disease, Autonomic Dysfunction, Seizures, Episodic Ataxia type 2/Familial Hemiplegic Migraine, and more.  Life is not easy here on our side of…

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