Hope is a Journey….

7 Years….and counting!

7 Years ago today, Ralph and I were introduced to the most fierce and sweet precious little girl we would ever meet……

Sasha was born in the early morning hours of August 20th, 4 weeks premature, weighing in at 7 pounds even.

In a matter of moments, we were thrown into a nightmare as we watched Sasha fight the first and hardest battle of her life.

It was like a sucker punch to our hearts – so unexpected and terrifying.

She spent the first 28 out of 40 days of her life in ICU’s fighting for her life.  We were reeling with fear and disbelief.

It finally seemed like the worst was over and we were going to be able to just move on and she would lead a ‘normal’ life…

We couldn’t have been more wrong…it was only the beginning…

Countless sleepless nights, difficult and trying days filled with tears and anger as we watched our sweet precious girl endure things no human being should ever have to endure….

I think I could write a thousand pages about the endless appointments, questions, heartbreak, resentment, fear, and trying moments that she has had to face…and someday, I just might – but today, I would rather tell you about how incredible, strong, fierce, courageous, sweet, tender, honest, persistent, resourceful, amazing, and inspiring she is – not with my words…but through my eyes…

Sasha is my darling, my ‘Sassafrass,’ my reason to fight.  She has taught me so much about pushing on towards joy even when you are feeling her worst.

She has battled through illness, seizures, unresponsive episodes, stroke like episodes, ataxia, fatigue, infusions, testing, a biopsy, weakness, migraines, heart and autonomic issues, and many other things.  She is a TRUE WARRIOR of LIGHT.

We are so blessed to have her as our daughter.

You may wonder why I’ve included the pictures of her in the hospital or during some of her testing…I wanted you all to see just how far she’s come, the things she’s overcome, the beauty she emulates in her best and worst of times, and the light that shines through every moment.  When we celebrate ‘LIFE‘ we don’t just acknowledge the ‘good’ moments – we acknowledge ALL the moments – for those moments – every single one of them (good and bad) make them who she is and she is BEAUTIFUL, STRONG, SWEET, COURAGEOUS, BRAVE and nothing short of a MIRACLE.

Birthday Breakfast!

Happy Birthday my Sweet Sunshine!

Happy Birthday!

Love and Light,


Comments on: "7 Years….and counting!" (2)

  1. Hi Stefani, As always you present the best of everything! Sasha is your blessing – you are Sasha’s blessing – your whole family and their approach is a gift to all of us who are trying to handle life’s speed bumps with as much grace as we can. You are our pathfinder.

  2. Anne Donahue-Boddy said:

    Such a great way to celebrate Sasha! Beautiful and well done.

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