Hope is a Journey….

I do it for this…..

It’s been a busy few weeks and I have so much to update you on, but for now – I am going to post about something really wonderful that happened last night!

Last night was the 4th Annual Promise of Hope Wine Tasting Event to benefit the Immune Deficiency Foundation.  It’s an event that I started 4 years ago because I wanted to do something ‘different’ and I wanted to have FUN while doing it!

For the past 3 years we have held the event in May.  This year, we wanted to ‘spice’ things up a bit, so we held it in October incorporating a ‘Murder Mystery’ theme into the event to change things up a bit.  Given the fact that I had just come off a whirlwind month of September (fulfilling my Kickstarter rewards, finishing up and releasing an album, planning the Show of Hope for the United Mitochondrial Disease Foundation as well as spending 8 days in the hospital and many other days in and out of Boston for the kids and for myself), you can imagine that I had my plate pretty full!  Thankfully, I had my ‘partner in crime’ (aka, the other Mom of Team Hope), Michelle to help keep the planning/organization up to par…even though she herself was struggling with her own medical issues (she was SUCH a trooper!). We’ve been friends for so long that we work as a well oiled machine!

For those of you who might not know…there are SO many details when running the type of event we have been doing.  It’s not just ‘get the wine and off you go,’  you have to secure the location, create a floor plan, gather live and silent auction items, get sponsors, create an eye catching design, create and print the programs/fliers/tickets, organize donated items into ‘packages’ and energize your community to care enough about your cause to show up and participate.  This year we wanted to give our guests a night to remember, so we added in the Murder Mystery….which, of course – added a zillion more details! It’s a lot more work than you think.  If you factor in the fact that both Michelle and I have children with complex medical issues and both of us have our own medical adventures and things definitely add up!  Despite our biggest hopes…most of the work leading up to the event is done by just the 2 of us. It’s always a monumental task, but one we are clearly willing to take on for the sake of our kids and those who will benefit from this!  Thankfully, this year, we were lucky enough to have some extra help from my mom, Aunt Louise, and my friend Colleen who all helped throughout the week as well as the night of.  I can’t tell you how much of a relief it was just knowing I had even a few extra set of hands to help!

Now on to the event!!!!!

The night went on without a hitch! The place was decorated to the hilt! (Here are just a few pics…)

Amazing cake by Michelle!

Before the night got underway...

The music was wonderful (AttiK has donated their talent for us for 4 years now and they are amazing)…

We had over $5,o00.00 worth of auction items donated for the evening.  The food was great, the wine was delicious (so I’m told…I don’t drink!), and all of the characters for the Mystery event showed up with fantastic costumes ready to dazzle the guests.

They all did a great job staying in character and played their parts like pros!  The auctioneer was fabulous as always and everyone had fun just enjoying a night out together!

And here are just a few of our guests enjoying the night as well…

You can view the entire album HERE

After everyone left it took us 2 hours to clean up (so much to take down!!!!) and pack into the vans…but I was able to finally SIT and take a moment to do a quick count on how much we raised.

Between sponsors, donors, live/silent bids, and admission – we raised over $12,000.00 for the Immune Deficiency Foundation!  I am so proud to say that we have such a great group of folks who not only ‘get‘ what we go through…but ‘get‘ why we do what we do and SUPPORT us! I can’t tell you how much it means to those of us fighting for a cure and awareness to have people “Show Up” in your life and help you DO something that helps change the lives of SO many other people…

SAVE THE DATE:  SEPTEMBER 29th 2012 will be our 5th Annual fundraiser for the Immune Deficiency Foundation – but we’re going to change it up this year to celebrate our 5th year…it’s going to be called the Promise of Hope Beer Tasting …so save the date, you will not be disappointed! 🙂

SO…..Why do I do this? 

Because every day I wake up to this:

And every breathe I breathe is for this:

And I can’t bear the thought of living without this:

I am proud to be their mother and I want to teach my children that we can DO good in the face of something NOT good and we can make a difference and change lives in the process.  We are bigger than our struggles and we are stronger than we ever knew we were.

As a mom, I see it as my responsibility to teach them these things…and those who support our events and attend our events…they are teaching them this lesson as well.

My gratitude for this is beyond words….

Love and Light


Comments on: "I do it for this….." (3)

  1. You are doing an amazing job, Stef. Keep it up!

  2. You have taught me so much about strength, love, determination, giving and most of all HOPE! You always have a smile and a kind word for everyone you come in contact with, even though you have so much going on in your life. You have given back to our community and helped many come together with your incredible spirit!

    I am honored and blessed to know you and call you my friend!

    My prayers are with you everyday, Stef, Ralph, Sasha, Will and your entire family!

    Colleen (OXOXOXO)

  3. Glad it turned out to be an awesome night Stef. Sorry I couldn’t be there due to my schedule. Much love to you guys and we will catch up soon. I am blessed to have you all in my life.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: