Hope is a Journey….

Archive for October, 2014

I’ll Give You 56 Reasons

In honor of International Plasma Awareness Week!

Show Your Hope!

Many of you have probably never given blood donation much thought….
And if you haven’t….let me help put the importance of it into perspective for you:

If that isn’t enough….let me give you 56 reasons to get out there and give blood:

  1. 4.5 million Americans would die each year without life saving blood transfusions.
  2. Approximately 32,000 pints of blood are used each day in the United States.
  3. Every three seconds someone needs blood.
  4. One out of every 10 people entering a hospital needs blood.
  5. Just one pint of donated blood can help save as many as three people’s lives.
  6. The average adult has 10 pints of blood in his or her body.
  7. One unit of blood is roughly the equivalent of one pint.
  8. Blood makes up about 7% of your body’s weight.
  9. A newborn baby has about one cup of blood in his or her body.
  10. The average…

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Gallery

Dear Disney…

As we surpass the 1 year mark for this ‘New System Introduction’ – I just want to RE SHARE this and keep it on the front burner. These changes are NOT acceptable for many in the disability community and many have chosen to go other places for their “Magical” vacations because of nightmare experiences with this ‘New System’ – Please share this post and help us be heard!

Show Your Hope!

Dear Disney,

I would like to take a moment and thank you for the joy you were able to give my children the last time we visited.

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I can’t begin to tell you how wonderful it was to see joy scribbled all over their faces….IMG_1079

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Last year, after a particularly tough time for all of us (medically speaking), my daughter had only one wish….to go to Disney and see the Villains during Halloween.  We scrimped, we saved, we planned – and our entire family went….it took a lot – but we made it happen for her.

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It was a magical time for all of us.

You see, vacations like these are truly gifts to us.  My family battles Mitochondrial Disease, Primary Immunodeficiency Disease, Autonomic Dysfunction, Seizures, Episodic Ataxia type 2/Familial Hemiplegic Migraine, and more.  Life is not easy here on our side of…

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